KIDNEY patients

JBF assists patients listed for transplant at any of the 4 San Diego transplant centers:  Scripps Green, Sharp Memorial, Rady Children’s, and UCSD.  All requests come through referrals by transplant social workers.  If you have an emergency need, please contact them. If you need help and don’t know who your social worker is, ask your transplant coordinator. 


FOR THOSE INTERESTED IN A TRANSPLANT (ANY ORGAN)

 
 

It’s important—and not that hard—to collect all the information you can from reputable sites and sources. The waiting areas of your nephrology office should also have brochures. Call your local transplant center to inquire about material they have online or can send—or if you may speak with someone on their transplant team. Locate your local transplant centers at: http://optn.transplant.hrsa.gov/members/directory.asp

If it is a kidney transplant you are considering please share your mailing address on the form below and JBF will mail you an excellent guide to transplant written by Dr. Mark Wedel.

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If you use the internet or can ask someone to help you, here are a number of useful sites.

links to RESOURCES*

 
 

Donate Life America:  for news in the transplant community and how to get involved in the cause, there is no better site. http://www.donatelife.net/

Trio:  an international non-profit organization formed to improve the quality of lives touched by transplant through support, advocacy, education, and awareness. http://www.trioweb.org/

American Kidney Fund: Full of ideas, free apps, information and can also provide assistance through referrals from dialysis social workers. www.kidneyfund.org/

American Association of Kidney Patients:  a national nonprofit funded by kidney pts for kidney pts, goal is education and to improve health and wellbeing of CKD patients. www.aakp.org 

National Kidney Registry: a non-profit dedicated to increasing the quality, timeliness and number of living donor transplants, significant registry of potential donors and the leader in pay-it-forward chains amplifying the value and benefit of altruistic donation. www.kidneyregistry.org 

Living Kidney Donor Network: a non-profit whose aim is to share knowledge and build the confidence to enable the life changing benefits of living donation. www.lkdn.org

Renewal: dedicated to assisting people suffering from various forms of kidney disease. We are a multi-faceted proactive team that is dedicated to saving lives through kidney donation.  http://www.life-renewal.org     

United Network for Organ Sharing:  a private non-profit that manages the USA’s organ transplant system under contract with the federal government.  The NOTA (National Organ Transplant Act) of 1984 called for a private nonprofit to run the Organ Placement and Transplant Network (OPTN).  Has held the contract since 1986. www.UNOS.org

UNOS list of all US transplant centers: http://optn.transplant.hrsa.gov/members/directory.asp

Kidneylink:  a comprehensive resource on kidney transplantation written & reviewed by medical professionals. www.Kidneylink.org

Organ Procurement & Transplant Network: essentially the data arm for UNOS, it maintains the only national waiting list and contains very comprehensive data on transplant waiting lists and outcomes.   http://optn.transplant.hrsa.gov/data/

The John Brockington Foundation: a San Diego-based non-profit whose goal is to create a culture in which organ donation is commonplace.  Contains an especially inspiring and instructive video from ESPN television’s Outside the Lines. www.johnbrockingtonfoundation.org

CBS News Katie Couric video:  a capsule tv summary of living donation and the domino effect from Good Samaritan donation. http://www.cbsnews.com/video/watch/?id=7042488n&tag=mncol;lst;1 

Scientific Registry of Transplant Recipients:  provides a profile on each US transplant center, the number of patients transplanted each year as well as their patient results. http://www.srtr.org/  

 List of all US transplant centers and their volumes and results.
http://www.srtr.org/csr/current/Centers/Default.aspx

United Network for Organ Sharing:  a private non-profit that manages the USA’s organ transplant system under contract with the federal government.  The NOTA (National Organ Transplant Act) of 1984 called for a private nonprofit to run the Organ Placement and Transplant Network (OPTN).  Has held the contract since 1986. www.unos.org 

Living Donation California:  full of information in an easy to understand format regardless of where you live. http://livingdonationcalifornia.org

Transplant Café is a blog based support group. Transplantcafe.com

Transplant Experience is a program that can help prepare you for what's ahead regardless of the type of transplant you need. Transplantexperience.com

*compiled with the help of Dr. Mark Wedel’s "So You’re Thinking About Kidney Transplantation"

Frequently Asked Questions about
donating/receiving an organ